"Cindy, don't bother asking. I just discovered the sole one patient study that shows the stem cell therspy does not work (at that Chinese clinic). There is also a known quack in the USA trying to sell stm cell therapy as. mirace cure for many…"
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Discussion Forum
Atrophied optic disc - Is stem cell therapy a solution?
Started by Peter Leeflang in Treatment Options. Last reply by Peter Leeflang 5 hours ago. 2 Replies 0 Likes
Question about Proton Beam Therapy
Started by Jonathan Isaacson in Treatment Options. Last reply by Peter Leeflang 5 hours ago. 7 Replies 0 Likes
Big decisions
Started by Ashley G in Introductions. Last reply by Kathy yesterday. 3 Replies 0 Likes
Headaches
Started by Tina Muck in Introductions. Last reply by Tina Muck on Friday. 2 Replies 0 Likes
New Diagnosis of OM with mets to the Liver. Please help.
Started by Angela Williams in Living with Metastases. Last reply by Barbara Hill on Friday. 8 Replies 2 Likes
Swirls of Light
Started by Patricia D. Johnson in Introductions. Last reply by Bryan Neeley on Friday. 2 Replies 0 Likes
Wait and see ??
Started by Sherrie Erickson in Introductions. Last reply by Kylie T May 21. 5 Replies 0 Likes
Good news is that Gene Expression test DecisonDX-UM is being paid by insurer BCBS
Started by Peter Leeflang in Health Insurance May 21. 0 Replies 0 Likes
Introducing myself
Started by Vanessa Hall in Introductions. Last reply by Richard Jernigan May 16. 11 Replies 0 Likes
Costs of post treatment testing
Started by Jeremy in Health Insurance. Last reply by Peter Leeflang May 16. 15 Replies 0 Likes
OM in the News - Blog Posts
U.S. Team Implicates Newly Identified Gene in Ocular Melanoma Metastasis
Posted by Amy on November 5, 2010 at 6:47pm 8 Comments 0 Likes
Alnylam Forms Collaboration with UCSF to Investigate Therapeutic Silencing of Key Gene Implicated in Uveal Melanoma
Posted by Todd Cantrell on June 1, 2009 at 5:44pm 0 Comments 0 Likes
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Most Recent Activity on the Patient Forum
Peter Leeflang replied to Peter Leeflang's discussion 'Atrophied optic disc - Is stem cell therapy a solution?'Peter Leeflang replied to Jonathan Isaacson's discussion 'Question about Proton Beam Therapy'"Bryan, small correction. The 'markers', called tntalum rings, are not made of metal, but of plastic. That is hy you get a card to ell MRI centers and De TSA at airports hat their mchines won't go off. Otherwise it sees you had he same…"
Kathy replied to Ashley G's discussion 'Big decisions'"Dear Ashley,
I am so sorry to learn that you are faced with this heinous cancer. Our daughter was diagnosed in 2001 and she did have enucleation followed by aggressive chemo - cispaltin,tamoxifin, and the other one. We live in San Diego and Dr. Ed…"
Tina Muck replied to Tina Muck's discussion 'Headaches'"Thank you for responding Rose. I mentioned the headaches to my opthamologist on my last visit and the Neurologist ordered some tests from him as well. All of my pressure is normal, and the others tests were normal as well. The neurologist is now…"
Barbara Hill replied to Angela Williams's discussion 'New Diagnosis of OM with mets to the Liver. Please help.'"Thank you for sharing your family's story. I recently became aware of a top melanoma researcher at Memorial Sloan Kettering Cancer Center in NYC who may have a clinical trial going on. His name is Dr. Richard Carvahal. I…"
Bryan Neeley replied to Patricia D. Johnson's discussion 'Swirls of Light'"It will eventually go away. "
Bryan Neeley replied to Jonathan Isaacson's discussion 'Question about Proton Beam Therapy'"It was outpatient surgery for me. Four markers were sutured onto the back of my eye. The metal remains by the way. I was not awake during the procedure and it was not much to it; very short recovery period. The only…"
Susan Wilcockson replied to Patricia D. Johnson's discussion 'Swirls of Light'"Yes! I am 8 months post-plaque. In my case, it is due to the retinal detachment & fluid (caused by the tumor pre-surgery). I have heard from lots of other members who have it as well. Sometimes, it will resolve on its own, or your oncologist may…"
James Loubiere replied to Ashley G's discussion 'Big decisions'"Ashley,
I'm so sorry that you're part of our group. The biggest problem with this disease is that there is not clear cut treatment that is sure to work. So no one can tell you what's the best treatment option. The drugs like Sutent…"
Shelley Isaacson replied to Jonathan Isaacson's discussion 'Question about Proton Beam Therapy'"Can anyone talk about what you experienced after the surgical procedure prior to the proton beam therapy? How was the recovery? What were restrictions?
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"Very interesting!! I wonder if any of the docs that treat OM patients are aware of these results. I will be meeting with my new doctor at UVA sometime this summer. I'm going to ask if he knows about this research. Thanks…"
Peter Leeflang posted a discussionAtrophied ocula disc - Is stem cell therapy a solution?
I have an atrophied optic disc in my tumor eye, which means my vision is virtually all compromised. Now I'm looking for solutions to fix this disc. No doctor even considered that it is possible to fix it. They look at it as 'dead material', not fixable.I started looking around online and found that some clinics outside the USA actually report very good results with using stem cell therapy. Here is an example in Bejing at…See More
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