OMF Patient Forum

Welcome

Welcome to the OMF Patient Forum, a one-stop meeting place for OM patients, family, and friends to communicate, offer support and share information.


To begin using the Forum, you need to become a member and create an online profile. Then, you can access all the features, upload pictures and info about yourself and about OM, chat online, and participate in discussions with other members.


To join, click here.

Visit the Forum Tutorial to learn more.

Events

OM Scientific Working Group Symposium - October 12, 2009 (Boston, MA)

This was the first ever interdisciplinary scientific meeting addressing ocular melanoma. Stay tuned for more details on the outcomes of the meeting.
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If you would like to fundraise for OMF or know of an upcoming event or symposium that may be of interest to this group, please let us know and we will post the event information here.

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Discussion Forum

Laura Myer

Update on my Husband's Treatment. Great News! 7 Replies

Started by Laura Myer in Introductions. Last reply by Sara 17 minutes ago.

Kim Wolff

cutaneous ocular melanoma 2 Replies

Started by Kim Wolff in Introductions. Last reply by Kim Wolff 1 day ago.

April Burnard

A wife that is doing all she can to hold on to what she has! 3 Replies

Started by April Burnard in Introductions. Last reply by April Burnard 1 day ago.

Julie Brown

Eye Enucleation and Nausea

Started by Julie Brown in Support for OM Patients 1 day ago.

Julie Brown

Mum's Ocular Melanoma spread to the liver 4 Replies

Started by Julie Brown in Support for OM Families. Last reply by Joanne Gumbs 1 day ago.

Helen

second time around 12 Replies

Started by Helen in Introductions. Last reply by Sharon Robinson Nov 20.

Victoria

Choroidal Melanoma 8 Replies

Started by Victoria in Introductions. Last reply by Eileen May Lewis Nov 20.

Jenny Richardson

Choroidal melanoma

Started by Jenny Richardson in Introductions Nov 16.

Esther Damaser, Ph.D.

Have you had Cyberknife?

Started by Esther Damaser, Ph.D. in Treatment Options Nov 15.

Sara

New Liver Mets Found: Molly 2 Replies

Started by Sara in Living with Metastases. Last reply by Kelli Nov 13.

Videos

OM in the News - Blog Posts

Sara

Microwave Technique Successful In Treatment Of Liver Tumors, Surgeon Shows

Posted by Sara on May 27, 2009 at 11:38pm

Todd Cantrell

Culprit in Eye Cancer Identified, Drug Development Begins

Posted by Todd Cantrell on June 1, 2009 at 5:39pm — 2 Comments

Todd Cantrell

Alnylam Forms Collaboration with UCSF to Investigate Therapeutic Silencing of Key Gene Implicated in Uveal Melanoma

Posted by Todd Cantrell on June 1, 2009 at 5:44pm

Becky Selig

CNN.com: Liver cancer therapy trial showing success

Posted by Becky Selig on June 22, 2009 at 12:30pm

Grant Allen

Two Young OM Survivors Complete ZOOMA Women’s Race in Annapolis

Posted by Grant Allen on June 2, 2009 at 12:30pm — 1 Comment

Photos

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Most Recent Activity on the Patient Forum

Sara replied to Laura Myer's discussion 'Update on my Husband's Treatment. Great News!'
Dear Laura, This is really amazing news and we are thrilled for your guys. This is the miracle we all hope and pray for. Do you know if your husband's tumor has been tested for a particulate genetic mutation... i.e. the XL281 is a RAF inhibitor ...
17 minutes ago
J P is now a member of OMF Patient Forum
Welcome Them!
18 hours ago
Kim Wolff replied to Kim Wolff's discussion 'cutaneous ocular melanoma'
Thanks Sara. I appreciate you time. As I have further researched, I too think if the dr said cutaneous, it originated elsewhere. My sister in law says the doctor said they will need to do biopsy of the lymph nodes in the head and neck depending on...
yesterday
April Burnard replied to April Burnard's discussion 'A wife that is doing all she can to hold on to what she has!'
We are patiently waiting for the biopsy report... I have come to the conclusion that I cannot put my life on hold on something that may be. My children need me to be the mom that i am and my husband needs some normality again. Branden (my hubby) i...
yesterday
Julie Brown added a discussion
Eye Enucleation and Nausea
Hi there I wonder if anybody can help me please; my mum is a normally very fit 70 year old lady and out of the blue was diagnosed with OM in June this year and liver mets in August confirmed in October (approx 15 small lesions). She went into She...
yesterday
Sara replied to Kim Wolff's discussion 'cutaneous ocular melanoma'
Hi Kim, I am not sure, but it sounds to me like your mom may have cutaneous melanoma that has metastasized to her eye. While melanomas all originate from a particular type of cell in our bodies called a "melanocyte" (and this is what they have in...
yesterday
Joanne Gumbs replied to Julie Brown's discussion 'Mum's Ocular Melanoma spread to the liver'
Hi Julie Sorry for not replying earlier but I've just seen your post. I am so sorry they have diagnosed mets, but knowledge will be on your side. I hope you're mum has now seen an informed oncologist and they are offering something. Most of the ...
yesterday
Brenda Tollefson left a comment for Durinda Mechelle Bennett Massey
on Saturday
Durinda Mechelle Bennett Massey left a comment for Brenda Tollefson
on Saturday
Sharon Robinson replied to Helen's discussion 'second time around'
Hi You are so right about this cancer. When we first found out about my husband's cancer we looked at everything on the net. I am a nurse so I know all about metastatic spread. We were devastated when we found out that there is no chemo which tota...
on Friday
Helen replied to Helen's discussion 'second time around'
Hi Rachael, thank you so much for this information ad I am sorry you had to go along this path as well. From what I am hearing, Professor Damato shall be our best option in the UK...
on Friday
Rachael Edwards replied to Helen's discussion 'second time around'
Hi Helen, I'm sorry that you have had this news today. I was diagnosed 5 years ago and I was diagnosed bu Mr Woods at Sunderland eye infirmary, I was then referred to Professor B Damato (Ithink that his details are on the forum) in Liverpool. Hope...
on Friday
Eileen May Lewis replied to Victoria's discussion 'Choroidal Melanoma'
Dear Helen My tumour was too near the optic nerve to have plaque treatment safely. I will have to check the size of tumour - it's a while back but I've got original details in a file! You are welcome to ask anything you want to and I will answe...
on Friday
Kim Wolff added a discussion
cutaneous ocular melanoma
My mother in law was diagnosed with ocular melanoma. My sister in law is a nurse practioner and she was with my mother in law when the surgeon told them it was cutaneous melanoma he found during removal of some of the lesion. I am trying to get mo...
on Friday
Helen replied to Helen's discussion 'second time around'
Thank you, Sharon. I will remember Dave in my prayers and I do hope all goes well for you guys. It's a very scary experience, I know- we have been down this path 7 years ago with thyroid cancer my dad had.. Did you find any useful internet sites w...
on Friday
Helen replied to Helen's discussion 'second time around'
Thank you, Sharon. I will remember Dave in my prayers and I do hope all goes well for you guys. It's a very scary experience, I know- we have been down this path 7 years ago with thyroid cancer my dad had.. Did you find any useful internet sites w...
on Friday
 

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