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Events
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EYE AM (Still) NOT ALONE
March 2, 2012 at 5pm to March 4, 2012 at 4pm – Washington, D.C.
SAVE THE DATE: EYE AM (Still) NOT ALONE March 2 - 4, 2012 OMF is pleased to announce the 2012 installment of the EYE AM NOT ALONE Patient Conference Series to be held in Washington, D.C. March 2 - 4…
Organized by OMF | Type: patient, conference
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Discussion Forum
After affects of treatment 10 Replies
Started by Kylie T in Treatment Options. Last reply by Kylie T 14 hours ago.
Some Questions … Ok, Several :) 13 Replies
Started by Ashley Reed in Miscellaneous. Last reply by Mary Owen Link on Saturday.
drug trial
Started by lisa bearne in Support for OM Families Jan 16.
Mom's OM 1 Reply
Started by Sally Wheatley in Introductions. Last reply by Karen Sutton Jan 13.
double vision 4 Replies
Started by Catherine Gilmore in Support for OM Families. Last reply by Kylie T Jan 8.
Pain in Treated Eye 5 Replies
Started by Cindy Smith in Miscellaneous. Last reply by Joan Gilmore Jan 5.
Sir Spheres 26 Replies
Started by Tom Valerga in Treatment Options. Last reply by Karen Schroeder Jan 3.
Thyroid and cancer link? 8 Replies
Started by Barbara Began in Research & Clinical Trials. Last reply by Kylie T Dec 26, 2011.
Follow-up care for Class 1 tumors 5 Replies
Started by Jeremy Brower in Miscellaneous. Last reply by Ashley Reed Dec 23, 2011.
Sub-retinal Fluid 14 Replies
Started by Nelia Brooks in Miscellaneous. Last reply by Sandy Jo Dec 20, 2011.
OM in the News - Blog Posts
UCLA surgeons find new way to shield vision during radiation for eye cancer
Posted by Becky Selig on July 18, 2010 at 1:50am — 5 Comments
Ipilimumab Improves Survival in Advanced Melanoma
Posted by Sara Selig, MD on June 10, 2010 at 3:04pm
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Most Recent Activity on the Patient Forum
a whitehurst left a comment for Beau robins
Your first step may be locating an ocular oncologist; there is a list on this site. There are several members of the forum from Australia, and hopefully they will give you some suggestions. Best wishes to you and your mother.
Kylie T replied to Kylie T's discussion 'After affects of treatment'
Your right Mark, the local anesthetic is the most uncomfortable part. You then allow some time for the eye to numb then it's simply sitting with your head in the frame like when the dr looks into your eye. My dr took over from there…
Nelia Brooks replied to Kylie T's discussion 'After affects of treatment'
I have not had the TTT laser, myself, but have heard from others that the process takes about 20 minutes and you can feel a burning sensation. I don't know about the recovery. Someone said you have to keep very still during the…
Mark Edwards replied to Kylie T's discussion 'After affects of treatment'
Thanks Kylie & Nelia. Can you tell me more about the procedure itself? I understand they give local anesthesia to the eye and then shoot it with the laser. Sounds like the local may be the worst part of it. Any discomfort otherwise..? I'm…
Nelia Brooks replied to Kylie T's discussion 'After affects of treatment'
Mark, my doctor explained last week that TTT laser uses heat to stop activity in the area of a tumor. He said it is quite effective but can cause trouble by closing blood vessels. However, if your tumor is still active, a damaged blood…
Kylie T replied to Kylie T's discussion 'After affects of treatment'
Mark, I'm so sorry to hear that there has been growth with your tumor. I had the TTT laser last year and I really can't say it did a lot for me. Giving your circumstances it maybe a necessity to prevent the tumor from spreading…
Kylie T replied to Kylie T's discussion 'After affects of treatment'
Thank you David. I hope the shots will be a last resort! I was a little naive thinking after all the treatment everything will be all over and done with!
Kylie T replied to Kylie T's discussion 'After affects of treatment'
Thank you for the Information Nelia! Hopefully I will have some success with the drops :)
Mark Edwards replied to Kylie T's discussion 'After affects of treatment'
Kylie or anyone else, can you give me details on the TTT treatement? I had radiation placque therapy in March 2009 but now have some new growth in the tumor that docs think can be managed with the laser. My opthamologist At MDA…
David Jefferson replied to Kylie T's discussion 'After affects of treatment'
Hi Kylie-
I had a series of Avastin shots and the pain went away. My doctor said the fluid build up would eventually go away and the pain would go away without the shots. It's worth asking about.
-David
Nelia Brooks replied to Kylie T's discussion 'After affects of treatment'
Hi Kylie!
Plan B might include some Avastin shots. Is the fluid sub-retinal, or on top of the retina? Just in the last 3 months, I had fluid under my entire central vision. Just 2 shots of Avastin took care of it. Some people…
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