OMF Patient Forum

Welcome

Welcome to the OMF Patient Forum, a one-stop meeting place for OM patients, family, and friends to communicate, offer support and share information.


To begin using the Forum, you need to become a member and create an online profile. Then, you can access all the features, upload pictures and info about yourself and about OM, chat online, and participate in discussions with other members.


To join, click here.

Visit the Forum Tutorial to learn more.

Events

The LAB Ride:
Ride Against Ocular Melanoma

When: March 6, 2010, 8am
Where: San Francisco, CA

For more information, visit thelabride.org
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1st Annual Ocular Melanoma Scientific Working Group - October 12, 2009 (Boston, MA)

This was the first ever interdisciplinary scientific meeting addressing ocular melanoma. Click here for the symposium press release.
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If you would like to fundraise for OMF or know of an upcoming event or symposium that may be of interest to this group, please let us know and we will post the event information here.

OMF Newsletter

Sign up for the OMF e-NEWSLETTER




 

Discussion Forum

bonnie sevier

Pet Scans 6 Replies

Started by bonnie sevier in Miscellaneous. Last reply by Kelli 11 hours ago.

patricia lee kovach

Prognosis 33 Replies

Started by patricia lee kovach in Introductions. Last reply by Kelli 11 hours ago.

terryjohnson

Anyone have molecular/genetic testing done at time of plaque surgery? 12 Replies

Started by terryjohnson in Research & Clinical Trials (PUBLIC). Last reply by Kathy B 1 day ago.

Heather Chaney

First and last post 3 Replies

Started by Heather Chaney in Introductions. Last reply by Sandy Jo 1 day ago.

Lauren

Stage IV Hope 18 Replies

Started by Lauren in Introductions. Last reply by Kelly Frechette 1 day ago.

Kathy B

Concerned about radiation? 3 Replies

Started by Kathy B in Treatment Options. Last reply by Bryan Neeley Mar 8.

Cindy Smith

Cancer drugs 12 Replies

Started by Cindy Smith in Treatment Options. Last reply by Cindy Smith Mar 6.

clare parker

mets to nasal cavity 2 Replies

Started by clare parker in Miscellaneous. Last reply by clare parker Mar 6.

Joy Murphy

Plaque Therapy vx Removal 10 Replies

Started by Joy Murphy in Treatment Options. Last reply by Sandy Jo Mar 3.

Amy

New here with a question 36 Replies

Started by Amy in Miscellaneous. Last reply by bonnie sevier Mar 3.

Videos

OM in the News - Blog Posts

Sara S.

Microwave Technique Successful In Treatment Of Liver Tumors, Surgeon Shows

Posted by Sara S. on May 27, 2009 at 11:38pm

Todd Cantrell

Alnylam Forms Collaboration with UCSF to Investigate Therapeutic Silencing of Key Gene Implicated in Uveal Melanoma

Posted by Todd Cantrell on June 1, 2009 at 5:44pm

Becky Selig

CNN.com: Liver cancer therapy trial showing success

Posted by Becky Selig on June 22, 2009 at 12:30pm

Photos

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Questions?

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Most Recent Activity on the Patient Forum

Stacey Smith is now a member of OMF Patient Forum
Welcome Them!
6 hours ago
A discussion started by Lauren was featured
Stage IV Hope
Hi, I'm new to this board (though I looked around a few months back).  My daughter, now 19, was dx in 2004 with an unknown primary.  Melanoma found in lymphnodes in neck.  They check her eyes at that time and found nothing.  She did interferon and r…
6 hours ago
Kelli replied to bonnie sevier's discussion 'Pet Scans'
Blood tests are not enough, scans need to bve done as well
11 hours ago
Kelli replied to patricia lee kovach's discussion 'Prognosis'
Sara, I thik the statistics are higher than 50% if you have the "bad" gene, as my husband did
11 hours ago
Norma Rogers replied to patricia lee kovach's discussion 'Prognosis'
Kellli sorry to hear of your troubles. Good luck on the finances. even with health insurance things get pricey.
yesterday
Norma Rogers replied to patricia lee kovach's discussion 'Prognosis'
I agree with this advice. My husband had stomach cancer which we caught early and tereated. He has been cancer-free ten years, then I got mine OM. I believe in prayer and preventive checkups. We are taking it one step at a time..
yesterday
Kathy B replied to terryjohnson's discussion 'Anyone have molecular/genetic testing done at time of plaque surgery?'
molecular tests can only be done on the tumor itself if you have had a biopsy. they check for chromosomes, of which different types can help detrtmine chance of mtes. with genetic testing they test the dna , which again can only be done with biopsy.
yesterday
Natalie added 4 photos
yesterday
Sandy Jo replied to terryjohnson's discussion 'Anyone have molecular/genetic testing done at time of plaque surgery?'
Thank you for posting the link to the article on EyeNet, it was helpful for me to understand what is going on in the diagnosis and treatment of this miserable thing we are all going through.
yesterday
Sandy Jo replied to Heather Chaney's discussion 'First and last post'
Thank you for updating the community at this sad time for you and your family. May lovely memories and sunny skies warm your heart as it heals. SandyJo
yesterday
Kelly Frechette replied to Lauren's discussion 'Stage IV Hope'
Todd, I hope all is going well for you, I was diagnosed in October 09 with no mets. I had plaque in October. I have my first scans done on 03/19/10 at Cleveland Clinic. I haven't been feeling well the past few days with an aching pain under my right…
yesterday
Kelly Frechette replied to patricia lee kovach's discussion 'Prognosis'
Did your husband have pain before the mets were diagnosed? It really scares me that there might not be any warning. Please let me know. Kelly F.
yesterday
Kathy B left a comment for michael kirt
yesterday
Sara S. replied to Heather Chaney's discussion 'First and last post'
Dear Heather, I am so sorry to hear the news about your mom-- I know this is a very difficult time for you and your family. This disease robs us all of so much. I will keep you in my thoughts. Sending you peace and strength, Sara
yesterday
Kelli replied to patricia lee kovach's discussion 'Prognosis'
When my husbands liver mets were found, there were several lesions, one being 18 centimeters by 18 centimeters, we were told he was not candidate for lver resection.If we had the resources to go see Dr Sato in Philly like Dr Shields recommended we w…
yesterday
Kay Blake replied to Heather Chaney's discussion 'First and last post'
I'm sure I speak for all of us on this site Heather - I'm so sorry. Thank you for sharing this sad news with us. Best wishes to you and your family. Kay
yesterday
 

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