OMF Patient Forum

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Welcome to the OMF Patient Forum, a one-stop meeting place for OM patients, family, and friends to communicate, offer support and share information.


To begin using the Forum, you need to become a member and create an online profile. Then, you can access all the features including telling your own OM story, chatting online, and participating in member discussions.


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Helpful Hint

Did you know you can search members of this forum by city, state or country to find others who live near you? To do so, click on the Members tab and click on "Advanced Search." You are then able to search members based on a variety of criteria. Stay tuned for other helpful hints...

Discussion Forum

Kylie T

After affects of treatment 1 Reply

Started by Kylie T in Treatment Options. Last reply by Nelia Brooks 18 hours ago.

Ashley Reed

Some Questions … Ok, Several :) 13 Replies

Started by Ashley Reed in Miscellaneous. Last reply by Mary Owen Link 22 hours ago.

lisa bearne

drug trial

Started by lisa bearne in Support for OM Families Jan 16.

Sally Wheatley

Mom's OM 1 Reply

Started by Sally Wheatley in Introductions. Last reply by Karen Sutton Jan 13.

Catherine Gilmore

double vision 4 Replies

Started by Catherine Gilmore in Support for OM Families. Last reply by Kylie T Jan 8.

Cindy Smith

Pain in Treated Eye 5 Replies

Started by Cindy Smith in Miscellaneous. Last reply by Joan Gilmore Jan 5.

Tom Valerga

Sir Spheres 26 Replies

Started by Tom Valerga in Treatment Options. Last reply by Karen Schroeder Jan 3.

Barbara Began

Thyroid and cancer link? 8 Replies

Started by Barbara Began in Research & Clinical Trials. Last reply by Kylie T Dec 26, 2011.

Jeremy Brower

Follow-up care for Class 1 tumors 5 Replies

Started by Jeremy Brower in Miscellaneous. Last reply by Ashley Reed Dec 23, 2011.

Nelia Brooks

Sub-retinal Fluid 14 Replies

Started by Nelia Brooks in Miscellaneous. Last reply by Sandy Jo Dec 20, 2011.

OM in the News - Blog Posts

Amy

U.S. Team Implicates Newly Identified Gene in Ocular Melanoma Metastasis

Posted by Amy on November 5, 2010 at 6:47pm — 1 Comment

Becky Selig

UCLA surgeons find new way to shield vision during radiation for eye cancer

Posted by Becky Selig on July 18, 2010 at 1:50am — 5 Comments

Sara Selig, MD

Ipilimumab Improves Survival in Advanced Melanoma

Posted by Sara Selig, MD on June 10, 2010 at 3:04pm

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Most Recent Activity on the Patient Forum

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Nelia Brooks replied to Kylie T's discussion 'After affects of treatment'
Hi Kylie! Plan B might include some Avastin shots.  Is the fluid sub-retinal, or on top of the retina?  Just in the last 3 months, I had fluid under my entire central vision.  Just 2 shots of Avastin took care of it.  Some people…
18 hours ago
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Mary Owen Link replied to Ashley Reed's discussion 'Some Questions … Ok, Several :)'
I apologize for that mix up.  You stated you have fluid and swelling, and you just had surgery a month before I did, right?  In August?  Wow..... You would think after going through the surgery that all should be well.  I was…
22 hours ago
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Kylie T left a comment for Susan
Thanks for the reply, I know of another lady on this forum also from Brisbane. I haven't heard of that support group and I currently don't attend any support meetings. I find a lot of useful information and support on the choroidal…
yesterday
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Kylie T replied to Ashley Reed's discussion 'Some Questions … Ok, Several :)'
Hi again Mary, I would have been extremely frustrated if they had lost my file as well!! This posted started about Ashley's mum not mine, I have the melanona myself. I recently have found out I have fluid and swelling in my eye, my doctor is…
yesterday
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Mary Owen Link replied to Ashley Reed's discussion 'Some Questions … Ok, Several :)'
How nice of you to ask Kylie!   I was re-reading one of the posts about your Mom and noticed one thing that caught my eye:  that was her sparkly circular vision.  That is weird, because I experienced that a couple of just a few weeks…
yesterday
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Susan left a comment for Kylie T
Hi Kylie, well we aren't the only two in Brisbane, I know of 2 others, one had her Enucleation the year before me and the other is undergoing treatment with drops.. he's abit vague on telling me too much about it. I also see Dr Glasson and…
yesterday
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After affects of treatment

Hi everyone,I had plaque treatment in August 2011 and TTT Laser treatment in Decmeber of 2011. I had pain in my eye whenever I moved my eye ball mainly when I looked up for about two weeks after the ttt. I thought this was probably normal, then about four weeks after the treatment my vision suddenly started to detioriate. Some letters looked normal while others were blurred. I thought it was the beginning of my vision going so I wasnt too concerned but nevertheless emailed the nurse. The…See More
Discussion posted by Kylie T yesterday
1 Comment
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Kylie T commented on Amy's blog post 'U.S. Team Implicates Newly Identified Gene in Ocular Melanoma Metastasis'
I contacted the genetic testing department here in our state and unfortunately they aren't aware of anywhere in Australia that is doing this testing. A bit disappointing as my dr doesn't do the biopsies of the tumor prior to treatment.…
yesterday
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Kylie T left a comment for Susan
Hi Susan, I hope all is going well for you. I just thought I would say hello as I'm from Brisbane as well!!! I was treated with plaque last August and TTT December of last year. I was treated by dr Glasson and continue to see him a but too…
yesterday
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Kylie T replied to Ashley Reed's discussion 'Some Questions … Ok, Several :)'
Hi Mary, how'd your doctors appointment go on the 17th?? I hope all is well Kylie :-)
yesterday
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Beata Varga is now a member of OMF Patient Forum Thursday
Welcome Them!
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Jim Forehand is now a member of OMF Patient Forum Tuesday
Welcome Them!

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